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14,661 Public Comments So Far

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3 months ago
Someone from Tonopah, AZ signed.
3 months ago
Darrell S. from Dothan, AL writes:
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I'm a disabled Iraq veteran that was hit by a antitank mine in Iraq and I'm treated unfairly by va doctors on my medicine because of the dea and I think it's pathetic especially for a 100% disabled Iraq veteran. Our country is failing us vets because of the government especially the dea
3 months ago
ANGELA S. from York, SC writes:
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SOME PEOPLE WITH LIFELONG ILLNESSES LIKE FIBROMYALGIA NEED NARCOTICS, NOT TO GET HIGH BUT TO SIMPLY LIVE.
3 months ago
Someone from Vancouver, WA writes:
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I'm 55 yrs old I have had pain for 35 yrs I can't believe how fast the dr have labeled me as a pill seeker I just want the pain gone ....
3 months ago
Someone from Fort Smith, AR writes:
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I'm a 54 year old woman and I have been suffering with my condition for over 16 years I have degenerated disc in my neck and my back I also have spinal sclerosis and I also have arthritis in my spine and I have a problem with having to go to the doctor every month to receive a prescription for my medication I'm on disability receiving a disability check and I really can't afford to pay that co-pay every month just to just to receive my prescription for my medication this is really getting ridiculous it's really getting costly and I really can't afford it I need help the DEA need to cut this out there are bad people out there that really makes it bad for the people that really needs their prescriptions people that don't need them really don't have a problem getting them but if they really need them have to go through all kind of loops and jump all kind of hurdles just to get our medication please Congress help us
3 months ago
Someone from Clay, WV writes:
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I have been in pain since 1995 I could my pain medicine in the state I used to live in now that I have moved to WV no Doctor will give me pain medicine there is some days I can't get out of bed no I'm not. A drug addict but I do need medicine !! Most of the people in WV is on welfare getting free medicine and food stamps, they use there food stamps to buy drugs with and we the people that need our medicine can't get it because of them, they need to make them get out and work for there welfare and food stamps!!!
3 months ago
Someone from Clay, WV writes:
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I have been in pain since 1995 I could my pain medicine in the state I used to live in now that I have moved to WV no Doctor will give me pain medicine there is some days I can't get out of bed no I'm not. A drug addict but I do need medicine !! Most of the people in WV is on welfare getting free medicine and food stamps, they use there food stamps to buy drugs with and we the people that need our medicine can't get it because of them, they need to make them get out and work for there welfare and food stamps!!!
3 months ago
Someone from Clay, WV writes:
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The DEA needs to come to Clay, West Virginia and arrest all the drug dealers here 99.9 percent of the people is on drugs, they would get a lot of dealers!!!
3 months ago
Someone from Clay, WV writes:
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The DEA needs to come to Clay, West Virginia and arrest all the drug dealers here 99.9 percent of the people is on drugs, they would get a lot of dealers!!!
just now
Cor S. from Cohoes, NY writes:
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I'm 59 years old with spine conditions MDs have stated are "a mes." As said above, since the misguided legal objectives for an issue that is medical in nature us causing me to total withdraw, gain weight, be unable to travel out participate in activities with my family, cannot use a vacuum, etc, etc EVER SINCE DOCTORS BECAME AFRAID TO PRESCRIBE PAIN MEDS for those if us who DO NOT ABUSER THEM! LOOK UP THE TRUE INFORMATION: Dependency DOES NOT EQUAL addiction! Talk to Addiction Treatment Providers! These can be found at any detox or rehab. They can give the DSM V definitions of abuse and addiction. Berry yet, read the criteria yourself! Please FREAKIN Help those if us who are going more towards suicide than life in unbearable pain. Don't WE COUNT AT ALL?
3 months ago
Someone from Belleville, MI writes:
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Dr. Brpooks in Ypsilanti Mi has been giving Dawn Bowen-Scharp soboxone for over2 years now. It is a 1 year program. And he is still continuing to prescribe it to her even thou she has moved to Ohio. She is alson still using her Michigan Medicad. Just last month she called he son and asked him to pick it up from the pharmacy and mail it to her. Which he did.
3 months ago
Someone from Anaheim, CA signed.
3 months ago
Someone from Jean, NV writes:
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i suffer from chronic pain. i found out from various sources many pharmacists are noting scripts being filled by certain drs by family members that work in pharmacists are being given inside information this is illegall we are being given pills that are no stronger than a tic tat. there will be more use of street drugs more drinking to try to numb the pain and worst of all more suicides . WE CRONIC PAIN PATIENTS NEED TO START MARCHES ON WASHINGTON OR MOVE TO BLUE STATES IN MASSES. THIS IS UNFAIR
just now
Timothy S. from Herculaneum, MO writes:
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I am a 57 yr old Disabled white male who has severe chronic back pain..toxic neurapathy leg pain from being raised for 20 yr next door to a lead smelter in Herculaneum Mo. I also am a former Autobody tech and Auto painter of over 40 years...I have been on pain medicine for over 15 years...I have been lied to by many Doctors who say they can't write pain meds and that I have to go see a pain doctor which cost me another 50.00 copay...I'm requesting the DEA since they created this mess to give us people living in hell because of chronic pain a certificate to get the pain management we deserve..with a certificate it will force these mean Doctors into treating our pain without fear of the DEA breathing down there necks...Please Help Us because I will not live in pain and I have 6 children who depend on seeing me everyday..
3 months ago
Someone from Brighton, MO writes:
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I am a 56 yr old grandmother of 10. I have had fibromyalgia for over 24 years. I am a double mastectomy cancer patient and have been through over 20 surgeries in my life. I have degenerative disks disease and arthritis and havery had a spinal fusion. I also suffer with chronic pancreatic issues. After my pain management rheumatologist of 15 years retired I was sent to his partner in the office and was assured that he would continue my pain management. He will not even discuss it with me and refused to continue my pain meds. I am now on track to be seen in a pain management clinic that treats addiction patients as well. I was told that I will be required to pee in a cup every time I visit the office and I will have to do it with someone watching! I am horrified at the concept! I don't understand what I did to deserve to be treated like an addict. I have found that i am not the exception but the rule now. This is so degrading and humiliating. Its disgraceful that this is what has become of our health care system.
3 months ago
Carole B. from Topton, NC signed.
3 months ago
debra m. from San Antonio, TX writes:
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I'm 57 I have constant pain I have several hernias have had over 20 operations o suffer everyday because the dea passed that law where the regular drs can't give out pain meds I really need them they keep me sane and free from my pain not all of it but to where I can manage my life please give back our rights we are not drug addicts we are real people suffering with real pain
3 months ago
Someone from Alfred, ME writes:
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I myself am headed in the same direction as everyone else it's not up to the Government who just sit on their duffs all day, they make up these laws that they nothing about. to make pain Patient's life so bad that a lot of my friends and people that I have heard about have taken their own lives. It's terrible when I can drive a mile from my own house pick up a gallon of hard alcohol Then go out and kill 1-20 people or more people from intoxication,They have no idea what they are doing.I have been a Patient for 20+ years now, Without any help, I am nothing but a vegetable. I am not a drug addict I just want to live the rest of my life with some dignity, I am actually gearing up. In case someone doesn't realize in congress what they are doing to us, If they don't realize what they are doing I'm working as hard as I can just to get my affairs in order, I'm not sure how I'm even going to do my shopping,Driving to appointment etc I'm afraid of what's going to happen to me as well. The government needs to keep out of our personal business. If drug attics are killing themselves. What's going to happen once Pain Patients start dropping as well ,will they just look back and say oops we made a mistake ? Every time I have seen a new law concerning pain meds. Things haven't gotten better they have only gotten worse.
3 months ago
Someone from Stanhope, NJ writes:
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I have ms, my pcp has been managing my pain and I finally have a good quality of life which I did not have before. I have had back pain for 20 years burning feet the last 7 and spuratic pain in my legs, here there and everywhere. I'm now forced to seek a new dr and probably be accused of "dr shopping". I feel like I'm already treated like 2nd class citizen from the pharmacist as it is! Now that I will be seeing a new dr. I'm going to have to put a paper bag on my head!!
3 months ago
Marie-Elizabeth D. from Bethlehem, PA writes:
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I have stenosis, severe neuropathy, bulging and ruptured discs, history of spinal fracture, spinal compression, RA .....to name a few. After FINALLY obtaining ins thru my state (whick took only 3 years cause I had no dependents!) I was sent to two ortho surgeons. First one dismissed me altogether stating he ONLY treats sport injuries (silly me I had no idea athletes did not get stenosis!) And the second one told me point blank my ins WILL NOT pay for the necessary surgery on my neck and back because I SMOKE! And, secondly, his atty has only given his group permission to prescribe the synthetic drug tramadol. APPALLED i told him let me get this straight: you discovered and diagnosed my medical issues and cannot help me by surgery and pain relief because the ins co and your atty dictates my therpeutic medicines and procedures to assist me in having any quality of life such as just GETTING OUT OF BED!? If thats true why am I making appts w a dr.? Just give me the addresses of the ins and atty and I will let them treat me! OH and even after that delivery of information he gave me a list of further tests to get! WTf Why!? Oh yeah because there is money in that...no reason not to get some money off my sad situation even though the dr. Cant or wont treat it further anyway! Guaranteed if I had private insurance, smoker or not, Ild not only get the surgery but real pain relief via meds. For the record, I have NEVER been addicted or abused anything other than of course cigs....which of course had I k own 40 yrs ago Ild struggle with getting off of them I would have NEVER buckled under pier pressure! I understand how the abuse of these drugs are rampant but someone, ANYONE please explain to me and many others why WE, legitimate patients are having to pay for their sins!? This type of medical care is nothing short of discriminatory and unacceptable medical care! What will it take for drs, lawyers, pharmaceutical Co and step up and treat each patients on a case by case basis; we JUST CANNOT prove a negative....that being we ARE NOT DRUG SEEKERS OR ADDICTS! This is a very dangerous, slippery slope a d trust and believe, lives will be lost! I am nearly bed ridden because most days are just too painful to even pick up a cup of coffee let alone function; to say suicide hasnt crossed my mind would be a lie but at this point I have absolutely NO QUALITY OF LIFE! Wake up and stop looking out for your own asses from litigation and stand by your oath! If if we up to many of us, we would file a class action suit for lack of medical treatment due to discrimination! In closing, I just want to point out that I am def NOT alone in this! Go on line and just read the hundreds of patients in situations just like myself....what is wrong with this symptom? We need help asap! Sadly, between the stank eye we get just mentioning the level of pain cause of COURSE WE WANT DRUGS to the complete disregard and lack of treatment we seem to encounter, there is a huge community of legitimate suffering ppl who have given up and resigned themselves to a life in bed and watching the world go by!
3 months ago
Karen R. from Hyannis, MA writes:
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I am 62. I have 9 fusions in my spine. 6 in my neck with Titanium Implants 3 in Lower Spine with Titanium. After 20 years of consistent use of 10 mg of Hydrocodone 10 mg every 6 hours around the clock, successful urinalysis testing, no speak of addiction or any legal issues whatsoever, I am now labeled a DRUG SEEKER! I have been denied pain medication by Dr's in Massachusetts. There is nothing in my record, physically or character-wise that would suggest that my CHRONIC PAIN MEDICATION be STOPPED! I NOW, can not move. AFter 8 months with no medication, I have had to stay in bed 14 hours a day. I have gained 50 lbs because I can not burn off the measly calories i take in. I feel so humiliated and discriminated against and a TARGET of UNJUST ACCUSATIONS! I am to the point where I have considered going out ON THE STREET and finding Pain Pills! THEY are the only ones who seem to have them, get them! I contacted the Sheriff and complained about this injustice and asked HIM: "How does taking away MY prescription for Hydrocodone, STOP the OPIATE ADDICTION PROBLEM. Aren't there LAWS in place to STOP illegal drug use? He said he would help me. So he gave me the number to a Dr. I called that Dr and the Dr began to LECTURE ME ON ADDICTION and to find alternative medications. I asked HIM: So I should take medications with side effects I know nothing about, that could effect other parts of my HEALTH?? That is when I could hear his tone change and begin speaking to me LIKE I AM A DOCUMENTED DRUG ADDICT! I wrote to the Sheriff and told him how hurt I was that he would subject me to the very thing that has been emotionally and intellectually abusive to me! I explained that my options are": To Do Without, stay in BED...get fatter, end up in a wheelchair. I could digress and realize that this is my lot in life and therefor I need to decide if I can live this way for much longer. I could opt to commit suicide and then I could be done with this nightmare I am in, the Dr's would be rid of me and the County would have ONE LESS PERSON LEGALLY TAKING CHRONIC PAIN MEDICATION. I also asked the Sheriff in my letter that he never responded to, why is it that DRUG ADDICTS are gettting FREE NEEDLES, THEY ARE GETTING FREE RIDES, THEY ARE GETTING FREE METHADONE? Should I take this as maybe another OPTION?? I have never been arrested...but at this point, I really don't care if I do. I am afraid of the people on the street who DO have pain pills and I am extremely afraid fo going to jail/prison for seeking out, getting pain medication ILLEGALLY. But here I am.... Should I decide to commit suicide and the County realizes that I am, in fact, DEAD and they cant prosecute me....JUST KNOW THIS....It will be SLANDER should this accusation follow me to my grave: "Oh, she was depressed and found she had to end the emotional PAIN"! NO NO NO......I am NOT DEPRESSED, although I have had Dr's try to suggest it. I am IN SEVERE PAIN! And I will end this letter the same way I ended my letter to the Sheriff (in an email he never responded to)..... "They Shoot Horses Don't They"? Yes, suicide IS A VERY VIABLE OPTION! This is CRUEL AND UNUSUAL PUNISHMENT FOR SOMETHING I NEVER DID1 If you are reading this on FACEBOOK...PLEASE SIGN. THIS is causing horrific consequences in the lives of NON ADDICTED Patients ......DESPAIR and EXHAUSTION! Please HELP!
3 months ago
Karen R. from Hyannis, MA writes:
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I am 62. I have 9 fusions in my spine. 6 in my neck with Titanium Implants 3 in Lower Spine with Titanium. After 20 years of consistent use of 10 mg of Hydrocodone 10 mg every 6 hours around the clock, successful urinalysis testing, no speak of addiction or any legal issues whatsoever, I am now labeled a DRUG SEEKER! I have been denied pain medication by Dr's in Massachusetts. There is nothing in my record, physically or character-wise that would suggest that my CHRONIC PAIN MEDICATION be STOPPED! I NOW, can not move. AFter 8 months with no medication, I have had to stay in bed 14 hours a day. I have gained 50 lbs because I can not burn off the measly calories i take in. I feel so humiliated and discriminated against and a TARGET of UNJUST ACCUSATIONS! I am to the point where I have considered going out ON THE STREET and finding Pain Pills! THEY are the only ones who seem to have them, get them! I contacted the Sheriff and complained about this injustice and asked HIM: "How does taking away MY prescription for Hydrocodone, STOP the OPIATE ADDICTION PROBLEM. Aren't there LAWS in place to STOP illegal drug use? He said he would help me. So he gave me the number to a Dr. I called that Dr and the Dr began to LECTURE ME ON ADDICTION and to find alternative medications. I asked HIM: So I should take medications with side effects I know nothing about, that could effect other parts of my HEALTH?? That is when I could hear his tone change and begin speaking to me LIKE I AM A DOCUMENTED DRUG ADDICT! I wrote to the Sheriff and told him how hurt I was that he would subject me to the very thing that has been emotionally and intellectually abusive to me! I explained that my options are": To Do Without, stay in BED...get fatter, end up in a wheelchair. I could digress and realize that this is my lot in life and therefor I need to decide if I can live this way for much longer. I could opt to commit suicide and then I could be done with this nightmare I am in, the Dr's would be rid of me and the County would have ONE LESS PERSON LEGALLY TAKING CHRONIC PAIN MEDICATION. I also asked the Sheriff in my letter that he never responded to, why is it that DRUG ADDICTS are gettting FREE NEEDLES, THEY ARE GETTING FREE RIDES, THEY ARE GETTING FREE METHADONE? Should I take this as maybe another OPTION?? I have never been arrested...but at this point, I really don't care if I do. I am afraid of the people on the street who DO have pain pills and I am extremely afraid fo going to jail/prison for seeking out, getting pain medication ILLEGALLY. But here I am.... Should I decide to commit suicide and the County realizes that I am, in fact, DEAD and they cant prosecute me....JUST KNOW THIS....It will be SLANDER should this accusation follow me to my grave: "Oh, she was depressed and found she had to end the emotional PAIN"! NO NO NO......I am NOT DEPRESSED, although I have had Dr's try to suggest it. I am IN SEVERE PAIN! And I will end this letter the same way I ended my letter to the Sheriff (in an email he never responded to)..... "They Shoot Horses Don't They"? Yes, suicide IS A VERY VIABLE OPTION! This is CRUEL AND UNUSUAL PUNISHMENT FOR SOMETHING I NEVER DID1 If you are reading this on FACEBOOK...PLEASE SIGN. THIS is causing horrific consequences in the lives of NON ADDICTED Patients ......DESPAIR and EXHAUSTION! Please HELP!
3 months ago
jason f. from Framingham, MA writes:
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I suffer from severe Siri Attic arthritis. I've had it since I was 16 years old. It is the worst type of any arthritis. It's crippling and debilitating. I had to stop playing hockey in high school because it was so painful in my feet. Finally when I was 26 dr. Figured out what I had. I had been suffering from juvenile arthritis for many years and no one noticed I was misdiagnosed and told it was bone spurs. Once they figured out what it was and believe how much pain I was actually in. I was prescribed five morphine per day a fentanyl patch and 150 Vicodins per month obviously I got addicted extremely quickly. One day the doctor forgot to sign the bottom of a prescription. CVS told me to bring it back and get a signature. So I did. When I went back my doctor it was no longer there so they sent me to his supervisor will be going to yell at me for being on too much medication. I agree I was on too much way too much. But I was walking no more pain and I could go outside and actually have somewhat of a life. I also suffer from severe anxiety and antisocial disorder very hard for me to go outside without having a panic attack so they gave me 3 coladapin per day. When I see my doctor again after he got in trouble for over-prescribing me he dropped me because he got in trouble from his supervisor. I had to go and find a new pain clinic which was extremely hard and long. So now I have been on a lot of parents for over 15 years and I am a marijuana smoker. I have weaned myself down to 3 morphine per day opposed to 5. I decided to take myself off of the Soma and flexeril that they were prescribing me because it made me so tired in the day. I walk into the doctor's office 2 months. And my new pain clinic once again for the 3rd time in 2 years told me I have been on the same dose of morphine for so long now that it must not be working and I need to move up. I know what a shady world and practice these doctors are in so I trust none of them. I reasonably told her no I did not want to move up my medication because I do not want to be addicted to any more than I already am. After being asked 3 times and told them each time I'm okay being on 3. The following appointment she decided to lower me to 2 period within a spend of one month she decided to tell me I need to be on 2 instead of 3. I outright asked her last month you told me I need it 4, but now this weak you are lowering me to two pills per day. I straight-out asked her how that can change in such a short span. You want to up my dose and when I refuse to lower my dose. That makes absolutely no sense. She replied with there are other pain clinics if you do not like our rules. And still never gave me an explanation on how I was lowered within 1 to 2 months after being offered more and refusing to take it. I made the mistake and complained. Now I have a group of doctors coming down on me because they speak to each other behind the scenes. Now after a total of 15 years of being on all of this medication together I was told just this week I have to choose between my coladapin or smoking marijuana. Which I feel is completely unfair. And most likely illegal because I have a doctor's letter from the state and also pay $250 a year to the state to be allowed to smoke marijuana. I currently give drug test every month and have no problem with doing so. So as today stands I am very frantic because I was just taken off of my coladapin after 15 years. All because I asked her proactive question about my own life now I am being completely persecuted by the whole doctor industry period being told to go somewhere else when they know there is nowhere else to go because too many junkies have overdosed. I understand the fact that plenty of people have died and it is not right. But the power of 1000 grieving mothers with the loss of their children standing at the front of the golden dome. I guess it was just enough for the state too start to pretend that they care about cutting off people. It's too late too many people have died. No disrespect to anybody that has passed away on it because it was probably not their own fault the doctor probably let them down that road in my opinion. I do not know what to do I am very scared. I feel like there's nobody out there to help me because there is no one out there to help me. Unless I die nobody's going to listen to my family or me. The only time the state pays attention is when somebody passes away. I don't want to pass away to be heard. I just want to walk and have my normal life back again. If anybody has any information of a help service that fights for people in pain right. I know I may sound crazy but I just don't know what to do I am scared I have never felt so alone in my life. Just like everybody else has wrote and all these posts. We are looked at as drug Seekers. And nobody cares unless you have a grieving mother on the State House steps. I think this should be ten thousand people in pain on the State House steps Maybe they would notice that. Thank you for reading this if you did. If you're in the same situation I wish you the best of luck because I know that there is probably no luck for us we are in for the fight of our lives right now. I wish everybody the best. The funniest part of this story is he decided to tell me I was no longer allowed to smoke medication the day that it was deemed illegal in Massachusetts. My doctor has a serious biased against marijuana he told me if it was up to him it would not be legal. Guess what it's not up to you the people have spoken. I should not have to choose between two things have been on for over 15 years. And I can't even smoke that much because the dispensaries are so expensive and far away. Sorry for rambling I just feel so lost and hopeless
3 months ago
Someone from Flat Rock, MI signed.
3 months ago
Someone from Houston, TX writes:
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I have suffering with chronic pain over half my life ( I just turned 60). It started with an automobile accident that altered the position of my cervical spine. In 2006 I finally had surgery a titanium brace and 8 screws, the surgery did nothing to control pain. In 2008 I had lumbar surgery in 2015 I had hip replacement surgery. You would think this history and the fact that I have never abused my medication or doctor shopped, would maybe cut me a little slack. But no, I am still treated like a drug abuser. This war on chronic pain patients is callous and cruel. It make me wonder if the demeaning treatment and the sheer stress of trying to manage their miserable circumstances that many of the overdoses are not suicides, that it has become just too much to continue to live with.
3 months ago
Someone from North Highlands, CA writes:
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No one will Prescribe meds for pain anymore because they are afraid of the Dea.
3 months ago
Martin S. from South El Monte, CA writes:
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I've been going to the VA since I got Ankylosing Spondylitis in my 20's. Now, at 65 my pain has been controlled with Vicodin every 4hrs. I could function like a normal man and kept my weight at 180lbs (6ft tall). A year ago the VA cancelled all my Vicodin. I am in constant pain, walk like a 100yr old and weigh 230lbs. I am seriously thinking of filing a class action lawsuit and protest in front of the VA Hospital.
3 months ago
Someone from New Cumberland, WV writes:
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I was being treated for Chronic Pain. All three sections of my spine are a mess. Several herniated disk, kylphoplasty, and a oteophyte complex. Tarsel Tunnel; Sydrome in both feet. This stuff is al chronic and painful/. It also almost all non treatable. I'm so tired of being treated like a criminal! Three months ago my Drs, office was closed by the DEA. I have been left with no pain meds, and no medical records. With all of my pain issues I have had to run around to hospitals and collect my medical Records to be evaluated by new Drs. My Quality of life sucks. My Grandchildren and my aging parents need me. I have never once been to the ER for pain. I have never sold, traided. snortred, or ran short of my meds. I followed all the rules and was able to have some quality of life. At 53, I cant wrap my mind around how I am to even begin to have a decent life. The DEA has gone overboard once again. Not EVERYONE who needs pain meds is an addict!
3 months ago
Ashley from Taylor, MI writes:
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So sick of doctors turning me away when i have spine issues and X-ray's and medical record to prove it .because low life scums abuse them to get high. If you want to get high smoke weed.god. why even have doctors when they don't help people in need.and the system is ****ed up. They want money but people in need will pay it ! Damn .
3 months ago
A broke*****country boy. W. from Ringgold, GA writes:
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Am I a freak now because i was broken in half my l 234 was all fused together when I was 20 years old and now I'm 55 years old and these damn pain management physician assistances are to damn uneducated and scared to treat the symptoms they treat all patients the same And that is a ******** when your MRI IS IN There FACE and I'm not going to say that I am sorry I didn't mean to say that because it is a bunch of ******** and we and our insurance company has to pay IS THIS STILL AMERICA OR NOT
3 months ago
Someone from Vancouver, WA writes:
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I've had kaiser for over 20 years. I've never had this kind of treatment before. I have chronic pain and they can help me but refuse to. I've had retribution for making a complaint. I've been lied to and treated with no respect. I'm so mad at kaiser I'm so stressed out. I have fibro sciatic torn tendons in my arm and nerve pain in my feet. They just want me to suffer and I'm sick of them on Jan 1st I will get new insurance and hopefully find a doctor to help me but it a complete shame I have to wait until then.
3 months ago
Chad T. from Melville, LA writes:
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I'm very confused with the fact that my doctor of over 3 years and yes he's one of many I've been sent to over the last 16 years. I was in a terrible accident in 2000 that all but destroyed my back. I've tried to take the smallest amount of strong pain meds so that I can have some sort of a life without being in constant pain and continue to work in the construction industry, but recently my doctor has told me that the Louisiana medical board is threatening him unless he removes his patients from somas. I've tried every other type of muscle relaxer on the market along with strong pain medication that he prescribes me each month along with drug test and I've never failed one. Some days my spasms start from below my left shoulder blade into my spine down to my*****and end in the back of my legs. Feels like a wave of that starts off slow then feels like I'm on fire on the inside. I've never had a reaction to anything that I've taken and regulate my meds by setting an alarm on my phone for every 4 hours tho keep me from over taking my meds. I've been studying everything I can get my hands on to see if any combination will work for the pain I'm in 24/7. This is not a life I want to keep living. Sad part is that there are no surgical procedures available for my condition that was an enormous kick in the nether regions. Have any of you on this site have any info or point me in the direction so I can see if they may interfere with the other meds I'm on. Email me if you have info I can share with my doctor on Tuesday. Thank you and hope all will find help soon.
3 months ago
Someone from Seattle, WA writes:
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I am angry, the pain is off the scale. I have been treated for my debilitating chronic pain for 13 of the last 20 years...that is how long it took to get treatment. My neck was fractured as a child, and I was never taken to the doctor. Then, as an adult I re-injured it at work. I was seeing chiropractors who discovered the cause of my pain through x-rays. Then an MRI revealed the details. Another injury- 8 1/2 months pregnant with my daughter, I slipped on a dirt hill while hanging onto a branch for stability in my horses' pasture. The branch snapped, and I landed on my behind, which also snapped my tailbone nearly off, and compressed the vertebrae in my lower back. My baby had dropped which splinted my tailbone, but the fall had caused a leak, so they had to induce labor a week later. I bravely had her with NO drugs. But I suffered every time I got out of a chair for a year, and then carrying my growing child around with compressed vertebrae and bulging discs over the years turned into chronic pain as bone spurs grew and sciatica developed. The neck pain causes bilateral nerve pain all the way from the vertebral nerves, down the radial nerves of both arms, My hands go numb and have pain simultaneously. At the same time I have severe pain in my neck, shoulders and upper back. To put my hands in cold water causes a reaction of unbearable pain, similar to smashing your thumb with a hammer. The stress and tension of the pain causes more pain. It is inescapable. Now the sciatica and trapped nerves in my back have made my feet go partially numb. A large pain clinic with several offices in and around Seattle was arbitrarily shut down by the DEA this August on "suspicion" of overprescibing to some patients. Eight thousand chronic pain patients were kicked to the curb, into a system that could not absorb that many new patients. This number did not include the shorter term patients who were injured, or had surgery requiring pain treatment. That brought the total number of untreated patients to about 25,000 people. So, some 60 phone calls later, no one takes my lowly Medicaid insurance, and my insurance company, my new primary doctor (I was forced to leave my doctor of 14 years because they had no answers for me) have all given me referrals that were dead ends- and they KNEW it! If I had cash for an office visit and prescription, then, maybe- but I don't. If I were a family pet, I would have been humanely destroyed long ago. We have compassion for our pets and don't want them to suffer. But what has society become to let this happen to good, honest people who were able to contribute to said society when their pain was under control? We pain patients are being abused in the cruelest way, and are light years away from the problem of opiate drug addiction on the street. So how will ruining our lives save a single one on the street? I am days away from certain disaster and there is no safety net to catch me. Pain causes high blood pressure. If I die of a stroke, it will just be one more overlooked cause of death that won't go on the rosters of doctor caused demise.
3 months ago
Someone from Howell, NJ writes:
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I urge all you pain warriors to flood the surgeon generals facebook page and email him. Not only him, who is playing a key role in this fictious opiod epidemic , but your state congressmen/women, They need to hear our pain daily! They need to know they are killing innocent law abiding chronically ill citizens by denying life saving pain medication to those who require opiods for a QUALITY OF LIFE! The surgeon general. cdc, fda, dea, prop and our government is responsible for many deaths due to inadequate pain relief. It is now being noted that ER drs are to turn away pain pts. I saw the article today. As every day more amd more legitimate pain pts are being kicked to the curb, are being DENIED LIFE SAVING PAIN MEDICATION, leaving them in agony! They go to an ER to get some relief and the surgeon general has made sure these ER drs are to deny pain pts any kind of pain relief. They are to tell pain pts there is nothing they can do for them and sens them on their way. What the f*** kind of country is this!? WE DESERVE TO BE TREATED WITH RESPECT, COMPASSION AND EMPATHY. OUR HEATHCARE IS A DISEASTER! How many of you corrupt lawmakers require pain medication in order to function? or your loved ones!? When a person has years of medical records , years of undergoing all kinds of alternative therapies , OTC AND NSAIDS, years of being injected with******that dont work and causes even more pain, then pushed into having surgeries that screw up the conditions even more, years of mri's and scans that document the debilitating incurable pain, there should be NO REASON WE ARE DENIED the one thing that gave us a QUALITY OF LIFE!!! SHAME ON OUR GOVERNMENT!! YOU HAVE FORCED THE CHRONICALLY ILL TO EXIST IN A TORTUROUS HELL!! THIS IS GENOCIDE!!!
3 months ago
Someone from Glendale, AZ writes:
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I live in Arizona.i have been a chronic pain patient since 1990. I'm in chronic,sevete pain 68yrs old ,and never abused my medications. After two years of having a great relationship whis philosophy,he will not prescribe my meds even though he says I am a great patient. I have been humiliated trying to find a pain doctor. I have even on my own, lowered the Morphine to see if I could do with less from420 mg/ Dy to 160mg/Dy. I can't get by on less. I also take soma4/Dy. These combinations is very helpful to me.I don't know where I can turn, except to go out of this country for my meds. This is horrible and traveling by car hurts me so bad.Thankyou.
3 months ago
Someone from Philadelphia, TN writes:
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I am in constant pain back degenerate disk disease acute pancreatic an on top of that had 10 teeth pulled 5 days earlier law pulls me over had not took my medics for that day hurting couldn't hardly talk he took me to jail because I talked with a slur costing me lits of money my doctor now I just suffer there are people who abuse it than there those of us that suffer
3 months ago
Kevin S. from Charlotte, NC writes:
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I agree with this statement: Someone from Howell, NJ writes: "I urge all you pain warriors to flood the surgeon generals facebook page and email him. Not only him, who is playing a key role in this fictious opiod epidemic , but your state congressmen/women, They need to hear our pain daily! They need to know they are killing innocent law abiding chronically ill citizens by denying life saving pain medication to those who require opiods for a QUALITY OF LIFE! The surgeon general. cdc, fda, dea, prop and our government is responsible for many deaths due to inadequate pain relief. It is now being noted that ER drs are to turn away pain pts. I saw the article today. As every day more amd more legitimate pain pts are being kicked to the curb, are being DENIED LIFE SAVING PAIN MEDICATION, leaving them in agony! They go to an ER to get some relief and the surgeon general has made sure these ER drs are to deny pain pts any kind of pain relief. They are to tell pain pts there is nothing they can do for them and sens them on their way. What the f*** kind of country is this!? WE DESERVE TO BE TREATED WITH RESPECT, COMPASSION AND EMPATHY. OUR HEATHCARE IS A DISEASTER! How many of you corrupt lawmakers require pain medication in order to function? or your loved ones!? When a person has years of medical records , years of undergoing all kinds of alternative therapies , OTC AND NSAIDS, years of being injected with******that dont work and causes even more pain, then pushed into having surgeries that screw up the conditions even more, years of mri's and scans that document the debilitating incurable pain, there should be NO REASON WE ARE DENIED the one thing that gave us a QUALITY OF LIFE!!! SHAME ON OUR GOVERNMENT!! YOU HAVE FORCED THE CHRONICALLY ILL TO EXIST IN A TORTUROUS HELL!! THIS IS GENOCIDE!!"
3 months ago
Robert D. from New Milford, CT writes:
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I am a 61 year old accomplished, internationally known artist. My work is in the homes of many celebrities and major art collections. Since the age of seventeen, I have not had one day without significant pain. I have Scoliosis. I have a a 40 degree lumbar curve and a 20 degree thorasic curve. In other words my spine is shaped like the letter S. Many of my discs are gone and alot of nerves are being crushed. I have had four spine surgeries including a SI fusion. I have severe arthritis, stenosis, akylising spondylosis. Additionally, something that is causing me the most pain is severe muscle pain and wasting. My father was diagnosed with a form of muscular dystrophy which came on in his thirties. In my thirties the muscle pain started and has gotten increasingly worse over the years. A Rheumatologist told me it could be LGMD...Limb Girdle Muscular Dystrophy. As the doctor was not a muscle doctor I was referred to a Neuro Muscular DR to diagnose with DNA testing. After a ruptured appendix surgery I was diagnosed with Fibromyalgia. (not sure of that) I know that sounds like a lot but that was what In was told. As I get older the pain has gotten so much worse. My pain doctor had me on a significant amount of Oxycodone/Oxycontin. I have an extremely high tolerance for these meds. A year ago, due to his gut wrenching fear of the DEA, he cut my meds in half. It was done so quickly that I went into precipitated withdrawal and wound up in the Emergency room with a siezure. I am seeing him next week for a cortisone injection and I am terrified he will discharge me. He wants to rid himself of all opioid patients (it seems to me). I have been with my pain doctor for 8 years...I consider him a friend. He talked me out of a top to bottom spinal fusion which is a very dangerous surgery for someone my age. If my medication is cut any further my career is over. As it is now I am barely able to paint. I can stand for not more than ten minutes. I can't even hold a cell phone to my ear without my arm muscles burning. When I was on the higher dose of Oxy combo, I had a full life. I was able to almost feel like a normal person. It has no side effects. It actually has two beneficial side effects. Before going on Oxy combo I had extreme IBS bordering on Colitis. The Oxy combo cured that. It also allowed me to have a better sleep pattern. I used to go for days without sleep due to pain. I no longer need sleeping pills. I have tried every form of pain relief known to medicine and to holistic medicine. I have tried accupuncture, cupping, traction, I actually had the equivalent of 200 bee stings, bee venom shot into my spine. I have tried every medication. The only thing that has ever worked is Cortisone, Naprosin (I had to stop recently due to stomach bleeding) and Oxy combination. The CDC and DEA are throwing a wide net to try to reign in drug abusers...I get that. But in the meantime they are destroying lives. The only analogy I can think of is as follows: There are people walking around beating people with white sticks. The authorities decide to find those people and take away their white sticks and prosecute. At the same time, just in case, they take away the white sticks from blind people... I am in a very desperate situation. I have started writing letters lo loved ones just in case I find myself with no pain relief. I am not afraid of dying. I am afraid of living with intolerable gut wrenching pain as i get older. I contacted my congresswoman and she has promised to help. I don't know why the DEA can't issue waivers for people with extreme, diagnosed chronic pain. That seems like an easy solution to me. Unless someone has lived with chronic pain they have no understanding how it changes you. I have become an angry irritated person and have lost many good friends. If I had a choice I certainly would love to go through life without any medication. Brilliant scientists have created this amazing substance that reduces pain...but, because people like Philip Seymour Hoffman and Heath Legder took these meds illegally, then drank liquor, then went to bed and died, I am forced to live in abject horrible misery. It took me a year to decide to go on opioid therapy. I finally got the help I was looking for for years. I completely quit drinking (Boy, I miss a good martini). I followed all of the rules my pain doctor laid out...I even had to sign a contract. I've been on opioid therapy for 15 years without a single problem. I have never broken the rules. I hope that there is something someone can do...As quickly as possible. Thank you for listening to my story.
3 months ago
Someone from Monroe, MI writes:
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Im too upset to express how awfolul it is that i was injured by levaquinn,,med ,,,that was in fact not a antibiotic but,, in fact chemo disguised as a antibiotic. Twice . My health downspiraled to disabled with chronic pain . I finaLy get on meds yrs later. Now dea has removed drs from my town made it impossible to get q dr for pain. Because they demonize pain by saying the cure for it is bad. Justice needs to be served in many levels
3 months ago
Barbara H. from Richfield Springs, NY writes:
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I was on Fetynal patches 12 mcg/hour.Oxycodone 5mgs.. I look these pain meds for years. My Doctor would Not up the dosage. My Prime Care Doctor Left in the beginning of 2016..My new Doctor took me off my pain meds, no weaning me off..April of this year,cold turkey,She didn't Care..She told me to take Ibuprofen, which I can't....I have MRI's that prove why I have Chronic pain.My Spine is awful. I now have scoliosis,and spinal stenosis in My cervical spine.Also arthritis,degenerated disc.My cervical Spine had no inward curvature, It was straight 11 years ago..My lower black is also bad..My curvature goes in to far, causing collapsed disc, degenerative disc, arthritis in Spine,also herniated disc.My hip joints are arthritic..My Pain has become unbearable. In able to walk, stand,. Bending over is unbearable pain. I lay in bed and cry.. I also have Fibromyalgia.... I haven't been able to get any Pain meds...These Doctors are all scared to prescribe opioids, it's not Fair I have to lose My quality of life.. I've had injections, My nerve endings burned.. That's very painful..Please Help the legitimate People who need pain meds to be able to do every Day functions..Thank You for your time...