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More Funds To Research A Cure For Scleroderma

Congress, please support this Petition by directing the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health to expand research related to Scleroderma, development and evaluation of new treatments, research on the relationship between Scleroderma and secondary conditions including: Pulmonary Hypertension, Gastroparesis, Raynaud's Phenomenon, and Sjogren's Syndrome. Establishment of family and childhood onset, patient registries. Support for the training of new investigators. Direct the Centers for Disease Control and Prevention to establish a Scleroderma Public Awareness Campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis.

This Petition is very important to patients, and family members living with Scleroderma. Thank you in advance for your consideration of this Petition.

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1 day ago
Taylour M. from Pompano Beach, FL signed.
4 days ago
Amanda K. from Brooklyn, NY signed.
4 days ago
Someone from Richland Center, WI writes:
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This disease is so misunderstood by not only we the people but also the medical field. I didn't realize it existed until my dad was diagnosed with it. I watched him struggle for 10 years until it finally took his life. When I tell people how he passed, not many if any knew anything about or even heard of it. We need to make more people aware of it, before they or a family member is diagnosed with it....cause then it's too late.
4 days ago
Luisa A. from Brooklyn, NY writes:
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Help! While we can. No one deserves to die like this. If it's hard on the person imagine the family left behind.
just now
Summer P. from Newport Beach, CA writes:
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I'm a new mom of a three year old, a sister, a daughter and a loving wife. I'm 40 and have a long life a head to live. Please help me do that. I've been diagnosed with CREST (last week) and am sad to see there's hardly any info on this awful disease. Help fund scleroderma for the love of Family. Please. My family needs me for just a bit longer. I promise to make a difference!!!
1 week ago
Terry Ann G. from Oak Harbor, WA writes:
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Please help stop the suffering.
1 week ago
patricia B. from Queensbury, NY signed.
1 week ago
j b. from Larchmont, NY writes:
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it is now 2017. We need to address every possible disease that threatens us.
1 week ago
Someone from Kansas City, MO signed.
January 15, 2017
Gloria B. from Natchitoches, LA writes:
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My Dad had this terrible disease back in the 1970's when there was very few cases of this back then, and there was very little known about how to treat it. My Dad lived about a year after they finally diagnosed what he had. I realize that they have come a long way since then, but there is still such a long way to go to know what causes it and how to treat it. It is a terrible disease and the people who suffer from it have a hard time just living day to day. Congress needs to really make an effort to talk with people who have been involved with this disease, do research on it, and help by allocating funds to help research Scleroderma. I would love to see some big fundraisers for this disease like they do for other diseases.